Category: Uncategorized

Cast A Stone Across Waters To Create Many Ripples…..

Cast A Stone Across Waters To Create Many Ripples…..

Cannonball Kids’ Cancer

Where to begin…….

So much is happening…So fast…. It is a ride I never imagined I would get on, but one I know I will never get off. 

I love this quote someone sent me:

‘ I alone cannot change the world, but I can cast a stone across waters to create many ripples’

Mother Theresa

The Foundation: Cannonball Kids’ Cancer founded June 10, 2014 was created not only by Michael and I but by all of you. I truly believe the quote above, there is nothing that has been achieved so far that is by Michael and I alone – nothing. It has been team work all the way and now that team is growing at exponential speed.  

I want everyone to know that although this isn’t a REAL job in the sense myself and my husband are not compensated in a monetary sense, that I take my position within the Board, the Foundation VERY serious. I have never been more dedicated to anything in my life.  I spend hours’ daily working towards a successful movement to eradicate pediatric cancer through education. Educate to Eradicate.

I fully believe that we have two choices with our words – 1. We can use them to complain or; 2. Use them to change our situation. I choose CHANGE. What use is it to sit around and cry over spilt milk – my son had cancer (41 days cancer free people) he may even get it again or get another secondary cancer – instead why not share that experience and make good of it…make those ripples in the water, ripples of good, ripples of hope, ripples of faith, RIPPLES OF EDUCATION. We at CKC believe in our hearts if we educate more people things CAN and WILL change.

IT’S NOT JUST A PIPE DREAM…..

Go BIG or Go Home…..

First things first… DC Update…

I have had many correspondences in the past 7 days since we left DC. I now believe I have two new friends in Capitol Hill, I may have worked my Scottish charm a little, okay a lot, but don’t judge me, it’s for the good of the kids. So everyone we met with seems on board with co-sponsoring our bill – HIGH FIVE ON THAT ONE. I made a point during our meetings to specifically ask if each representative me met with would co-sign a letter to Harold Varmus (Head of the National Institute for Cancer). For those that missed my last post – the NCI allocates 4 percent (actually 3.8) to all 100 or so pediatric cancers for research. Harold Varmus decides along with his team where the money is allocated. He is quoted as saying that adult cancer research helps pediatric cancer. Now I am a little more educated from some experts at CHOP I know this not to be true. CHILDREN ARE NOT SMALL ADULTS – they simply aren’t. In fact if we did more research on pediatric cancer we would be able to know more about the ACTUAL make-up of the cancer since there would be less environmental issues to determine causes from ( a thought provoking point  – don’t you agree?) . Back to my point right now our Florida Alliance is trying to put together a letter that we will all sign and send to the representatives we met and have them all co-sign our letter to Varmus. Why? Power? They have more say than we civilians do 😉 ….. At this point in time we are looking to perhaps set up a petition that people can sign so that we can send with the letter – the idea being this would have more weight than just a few parents and representatives.

Please know we are working hard and fast on this project.

Volunteer Applications:

If you haven’t been to our website please go to the volunteer section and fill in an application as soon as possible. Even if there is no position now, you will be added to a database for the future ( we don’t plan on going anywhere).

We have now FINALLY reviewed all the applications to date – one word – amazeballs (anyone liking this word yet? I am not giving up people)…It was overwhelming for me to read hundreds of applicants share what they wanted to do and time they wanted to dedicate to this cause. To this movement. Educate to Eradicate!!!

Please be patient with us – we will be in touch with everyone as soon as we possibly can. We are working with UK volunteers and US and there are hundreds which is just the biggest blessing ever!!!

Mission Statement

We have a mission statement – FINALLY!!! It is a really hard task to write one – why? Well, I, WE want to DO IT ALL!!!!! We want to help local families, and we want to fund trials, and we want to educate and the list never ends. Thank Godness I am not the one running the show here, I am thankful for the amazing team we have. They reined me in and we now have the bones of a 5 year plan.

We are looking for someone who can help us draft an official business plan- if that is you please email us.

YEAR ONE

Our primary goal is to register speakers – these speakers will be provided a PowerPoint presentation which if they do not have PowerPoint access when they present they may print out and speak from. We are enrolling around the entire US, UK and Europe. Go BIG or Go HOME (right?) There will be information to hand out when you speak. Speakers will select a number of times they wish to speak per year and where they wish to speak. This can range from in your work place like a hairdresser after hours, to your law firm, women’s group, church – anywhere where you can speak about pediatric cancer and hand out information sheets. The idea is to educate as many people as possible and the hope is that this will begin a movement of awareness that in turn will create funds. People will be given the opportunity to become donors or speakers. Each year we hope to grow the number of speakers we have and in turn raise more money to go to early detection trials as well as pediatric drug trials. Please know that children can be involved in this – if your child wants to stand outside your house and give information sheets out to local drivers passing by – encourage it.

If you have a child with cancer, or who is cancer free or sadly is in heaven please contact us – we would love to have other families as speakers – we believe that would be an amazing face to the message.

If you are interested in being a speaker feel free to email us at cannonballkidscancer@gmail.com

YEAR TWO

Will be a roll out of our children’s ambassador program. Our board of teachers from all grade levels and lawyers will be writing detailed protocols for elementary, middle and high school this year so that we have the power of words when we approach schools to implement the education into their schooling in 2015.

CALENDAR

It was advised to our Board that a good time to release the calendar is November 2014 in time for Christmas gifts. SPOILER ALERT: there will be Scottish Rugby players in kilts and Cannonball Kids’ Cancer t-shirts on the front cover…Just sayin….

So please if you are in a fun location with your Cannonball t-shirts on remember and email them to us.

BOOK – Thankful For The Fight…

I am excited – we have a team helping make the book a reality. It will be ready for sale in time for September GO GOLD month for pediatric cancer.

There is so much MORE going on, but for now this should be enough for everyone to digest.

More later.

Written by Mumma-Bear

Cannonball Kids’ Cancer

Thankful For The Fight

Pray Hard

41 Days Cancer Free

 

It’s NOT all SMILES and Balloons

What does 36 cancer free REALLY look like?

It’s NOT all SMILES and BALLOONS…

Cannon is cancer free – shouldn’t it be all smiles and balloons like we see on the tv adverts? 

The huge misconception…

What does 36 days cancer free REALLY look like?

Cannon woke up at 1am screaming:

It looks like this:

Anxiety attacks:

Despite the fact Cannon is considered ‘NED’ (no evidence of disease), the sheer misery of cancer invades our lives. Every aspect of our lives. 

Cannon, only two years old, takes four large capsules a day. They make him anxious and scared and give him mood swings. He is two! The medication he is getting is for adolescents and adults! He is two!! Why? Because the pharmaceutical companies don’t make drugs for children and the government is only giving us 4 percent of the funding pie to be divided among over 100 types of kids’ cancers. 

It looks like clinic appointments where a medicine is pumped in Cannon’s veins through a port in his chest for 45 minutes and he has diarrhea explosions all over him down his legs – not once, but twice.

It’s placing pee bags over his penis and waiting for hours for him to urinate.

It looks like being sedated and being placed on his stomach while holes are drilled in his back to take a sample of his bone marrow.

It looks like toxic medicine being pumped in him three days in a row so that he can be sedated again two days in a row and given two full body scans. 

After that’s all done he is off to Michigan to get him on yet another trial that will mean two years of traveling to Michigan, not to mention taking 8 capsules a day! 

Why?

Well, like we were told on day one, “The cancer your son has kills more kids than any other form of kids cancer”. Why? Because it comes back. So even though we don’t see any cancer on your son’s scans – there’s a pretty good chance it is still there and if it comes back – there is no cure and you would just be buying time…”

I’m sorry… WHAT???

So chemo, surgeries, stem cell transplant, radiation, 6 months of antibody therapy, two years of DFMO and it will PROBABLY come back? I don’t understand.

Cannon didn’t get back to sleep until around 4am. He cried, needed comforting and was anxious beyond what any two year old would ever be.

So no, cancer free ISN’T all smiles and balloons…

It’s living in three month segments, waiting for the next scan. It’s medications daily. It’s sleepless nights with anxiety. It’s sore stomachs from the medicines. It’s hearing aids. It’s occupational therapy. It’s speech. It’s educational physiologists. It’s physical therapy. It’s eating issues and diarrhea. It’s weakness. It’s not all smiles and balloons.

Cannon is impacted for the rest of his life. Someday I have to tell him he can’t have children. Someday he has to tell his partner that! 

It’s been said before that the treatments these kids endure are barbaric, dated and not in line with other treatments for adult cancers. If you don’t agree with that, head to your local hospital and shadow a child life expert and watch the misery that is the playroom of kids with cancer.

Cancer! 

It has changed OUR family forever!!!!

The treatments he endures are dated and barbaric! That’s right I said the word!!! And it’s true!!!

Someone said it yesterday… we don’t use computers that are 50, 40, 30 years old, yet we use treatments on our greatest gifts of our lives – our children, our grandchildren.

It’s not right, fair or just!!!

It has to change!!!!

One mad mumma-bear!!!

 

Written by Mumma-Bear

Cannonball Kids’ Cancer

www.cannonballkidscancer.org

Thankful For The Fight

Pray Hard

36 Days Cancer Free

DC – Day Two: Strategy

What next….

DC – Day Two – Strategy…

Ok, so I’m going to start with the emotional aspect of the two days, in all honesty so that I can get it off my chest and get down to business. 

Yesterday was emotionally draining but inspiring all the same. I sat aside a man whose child passed only two months ago – he was 8. I watched a family lift up the shirt of their child and show all his scars on his body as tears ran down the dad’s face and told officials – “they told me it’s just a matter of time until my son dies, that there are no more options”. That child is 4. For two years he has lived in hospitals with his family, that child has stage 4 neuroblastoma. As the table of twenty people told their stories to officials, Michael and I and the father I just spoke about were the only ones with children still alive today. After the day, Michael and I sat on a bench. We didn’t talk, we just sat, quiet, heartbroken by the stories we heard. Except they’re not stories… they’re REAL kids! Lost!!! We as a nation can change this!!!! At dinner last night Michael and I talked strategy – is the one we discussed the right one? Or should we be going another route? We have a Board meeting Friday and lots of information will be up on the site within the next week.

Day two began around 7am. I believe we were back at the hotel around 6pm last night so it was a full day. Michael and I grabbed a salad and sat down for 20 minutes the entire day, which was fine because I was not there to sit down but rather #STEPUP for these kids. 

The first meeting was with Senator Bill Nelson’s staffer, a very smart young man probably in his mid 20’s with no sign of a wedding ring and didn’t look or act like he had had any children. With that said, he challenged us to find an office that supported the National Institute of Health (NIH) more than them. He continued that he and his office are mystified at the cutting of funding. 

Background and Issue One: 

The NIH is given around $30 billion a year by Congress. Of that $30 billion, the National Cancer Institute (NCI) receives the largest piece of the pie – usually a little over $5.1 billion. This fiscal year they said they would give $4.9 billion. Here is the issue – the REAL issue: adult cancer research is funded around 60 percent of their TOTAL research funding from biomedicine. In other words, big pharma – pharmaceutical companies. So when the pie from the NCI gets smaller, adult cancer research is not nearly as affected as kids’ cancer who do not have the 60 percent fall back that adult cancers have. Why? Well, pediatric cancer doesn’t have 60 percent of it’s research from biomedical science companies. In fact, it doesn’t even have 1 percent of its total funding from it. Yesterday was not about blaming BIG PHARMA but instead informing government that WE (pediatric cancer) cannot afford a budget cut for we don’t have that fallback like adult cancers do. As you all know, of the $4.9 billion given to NCI, ALL pediatric cancers only receive a total of 4 percent of it. Single adult cancers get more than all kids’ cancers COMBINED!!!! I also learned that although there are 12 primary kids’ cancers, there are in fact over 100 types of kids’ cancers. All of those pediatric cancers get 4 percent between them. NIH is trying to cut that!!! So yesterday was about asking them to increase it, not cut it. We asked that they increase to $5.26 billion – that number was come to by 100’s of experts! That’s the number you at home will be asking for.

Issue Two:

Not only are kids dying due to lack of funding – we are losing talent. Why? So you’re a top notch graduate and all you want is to be in a lab and research the next cure. You look at what funds are available and you see there is no funding available for pediatric cancer and you choose another field. This is a fact. We have spoken to residents and confirmed this. So brilliant minds are losing interest in kids and the cause – it’s a vicious circle. One of the things Cannonball Kids’ Cancer has in it’s mission statement (publishing it this week) is to encourage new talent into the field. But we need incentives for these brilliant minds. 

I am traveling home today and once I am home I will get all the material on the website, including a list of “what you can do to help”… 

Issue Three:

We were all united yesterday in asking officials to co-sponsor the reauthorization of the Caroline Pryce Walker Conquer Childhood Cancer Act, which would increase the amount of funding available to pediatric cancer research. This is something everyone can get involved with and I will have more information on the site shortly on exactly how to do that. 

Issue Four:

It seemed yesterday we pulled at heartstrings – two of the officials we met with cried and one said he would pray over our children. That said, if everyone we met with says they will co-sponsor our bill and vote for the $5.26 billion increase in funding then why isn’t it happening? Well, one, they could be lying, or two, the issue isn’t the politicians but rather the NCI in the way they allocate the money. So Michael and I discussed that perhaps the lobbying should be done there and in Congress. It was suggested in our training to ask the officials to write letters to Harold Varmus who is the head of the NCI. I asked every single person I met yesterday would they write to him and they all said they would – I think it’s the accent.  😉 

But now I need to follow up with that! I need to make sure it happens! So I will be working on that this week. I will also put on our site the letter I sent and give an example letter so that everyone can send him a letter. I hear he is not a supporter of pediatric cancer and I watched him in an interview lately suggest that kids and adult bodies are similar in that the treatment in adults can be used on kids. Well, would you go to CVS and buy adult Tylenol for your 18 month old? I wouldn’t. Yet adult chemo is to be pumped into my son’s body? Peter Adamson of CHOP made a great point during our training. He made it clear that kids are not small adults! They simply aren’t! And that if we did more research on kids’ cancer we could actually find out more about adult cancers as we wouldn’t have the environmental effects to consider! A great point I thought. He also stated if we look at the NCI like a business – as investors – that there is no better return on money than in children. Average age of diagnosis of a man with prostate cancer is 70 but a child’s average diagnosis is 10. So if we talk about years saved there would be no greater investment! It didn’t seem this argument was needed to be made to Congress members – they all agreed kids should be a priority. So if they agree, perhaps NCI is our biggest challenge.

I appreciate that this is a lot of information to digest and truly a lot to process! So I’m thankful for anyone that reads it over and over and over until they get it. 

A list of what you can do will be on our site within a week. 

Thank you for fighting with us for these kids – OUR kids!!! With budget cuts occurring they need us NOW more than ever! 

Written by Mumma-Bear

Cannonball Kids’ Cancer

www.cannonballkidscancer.org

Thankful For The Fight

Pray Hard

35 Days Cancer Free

Day Two – Mid Day Update

Mid day report! 

It’s safe to say my feet hurt (high heels) but my heart hurts more. The stories we have learned and listened to today are simply brutal – but they are real. It’s real families here fighting for YOUR kids, not their kids, as all but two of us in the group are the parents of children who have died from cancer.

We are making progress.

The pictures are of team Florida. Proud to be on a team of incredibly powerful soldiers on the ground. Fighting for the next kid and family – so they don’t endure what we have. 

This is not impossible!

It is entirely possible!  

Please join the movement – go to our website and volunteer. We need speakers and fundraisers badly to help us change things! Not one more child needs to die before change happens!!

 #stepup

 

Written by Mumma-Bear

Cannonball Kids’ Cancer

www.cannonballkidscancer.org

Thankful For The Fight

Pray Hard

33 Days Cancer Free

 

Day One – Washington DC

Day One ….

DC Day One
DC Day One

Day One in Washington DC…

Well it’s safe to say it’s a marathon, not a sprint. The amount of work that is required to change things is vast and difficult – but I like a challenge so it veers well with my personality.  

I have to say that listening to story after story from parents whose children are no longer with us was both emotionally soul destroying and inspiring all in one. I’m motivated beyond my own comprehension.

We trained today from 10am – 6pm. We have five meetings tomorrow. We are divided into states. Our group will meet with two Senators: Bill Nelson and Marco Rubio and three Representatives: Daniel Webster, Gus Bilirakis and Dennis Ross. We were told we may meet with their staffers, but that maybe a good thing, they urged. 

There is a message we are trying to get across and today was all about unifying that message and asking for the same thing. More funding for our kids.

One lady’s story struck me. Her child died from brain cancer. She mentioned that Neil Armstrong’s daughter had the same treatment 50 years ago that her daughter had two years ago. Her daughter died. Horrific – we as a nation have let that little girl down! No change in 50 years in unacceptable. I believe we can change the face of kids’ cancer just like breast cancer and prostate cancer have done!!! It’s not IMPOSSIBLE (it’s mission possible – I believe).

I had the opportunity to speak with Gabriella Miller’s mother for a long time. We both got emotional about the fact of thinking of change for our kids. Gabriella died of brain cancer at 10 – she is famous for saying “talk is bullshit”, and it is! Her mother is an amazing woman and I praised her for her efforts for pediatric cancer. 

The speakers were outstanding!!! I learned so much and I promise once I am home to place all the information on our site with an action plan on how WE at home can change the face of pediatric cancer. Peter Adamson from CHOP was my favorite speaker – he truly got the message across! I wrote almost every word he said down in my notes. Again I promise to share it all!!! 

There are things WE can do at home. Those that aren’t in DC – right from your home! I promise to list them and get them up on the website. 

I am ever grateful for the opportunity to educate to eradicate kids’ cancer.

Tomorrow is a big day!! 

Written by Mumma-Bear

Cannonball Kids’ Cancer

www.cannonballkidscancer.org

Thankful For The Fight

Pray Hard

33 Days Cancer Free

#STEPUP – TODAY – I Challenge You!

Time to #STEPUP

Gold shoes – check! 

Team Cannonball is heading to Washington DC right now!!! 

We are part of the ON FOOT movement to encourage, gently persuade, charm – whatever we need to do to CHANGE the percentage of funding for research for these kids. I find “kill them with kindess” may be my motto, that said I reserve the right to change my mind at anytime!  Maybe my Scottish accent will come in handy – FINALLY! 

#STEPUP is something we are encouraging everyone to share any way you know how!  Whatever it takes, but I challenge you to SHARE this post and ask others to #STEPUP.

How can you help?

All I ask is you share this message: 

Our Government – the United States of America – has $5 billion each year that is allocated to ALL Cancers – of that 100 percent pie – all 12 kids’ cancers get 4 percent. That 4 percent is divided up between them. That’s why our kids are dying. Would you like to know what kills more kids than any other disease? You guessed it – CANCER!!!!!! 

That’s what I ask you to do. Take that message, repost it however you want!! But get the message to those that DON’T know – we NEED change!!

You can be a PART of the movement!!! 

EDUCATE TO ERADICATE!!!! 

It’s TIME!!!

Join the movement!!! Today!!!!

I receive hundreds of messages asking “how can I help”? 

Today YOU can help! 

Please check our website daily for updates on what we are doing in DC and the progress we are making. Team Cannonball can’t wait to join 247 other advocates from all over the country to make a difference for OUR kids – YOUR kids. 

Written by Mumma-Bear

Cannonball Kids’ Cancer

www.cannonballkidscancer.org

Thankful For The Fight

Pray Hard

32 Days Cancer Free

I Got GREEDY…….

When Cannon was in the midst of his battle hooked up to a life support machine fighting for every breath, I looked to Michael and I said “we need to show the world this”. I said if we can save one kid then it’s worth it. This wasn’t about just our son anymore, it was so much BIGGER than that! 

One kid….

That was all my emotionally broken down soul could handle as I held my baby’s hand…. 

I confess and I’m not ashamed to admit… 

I got GREEDY….

One is not enough. It’s just not. 

Why? 

Cancer is the NUMBER ONE killer of kids under 15. Not the second, not the third, not the fifth… the first!!!!!! 

As in no other disease kills MORE of our babies than CANCER!!!

4 kids will die today in the US. That’s four sets of parents, four grandparents, countless siblings, communities and above all the kids are losing on average 69 years of their life…. 

That’s why!!!!

Say all you like about more people get adult cancers and that’s why there is more funding – to that I say this: Adults lose on average 7 years of their life (going on average life expectancy) and kids lose around 69 years.   So yes, I get the arguments said to me all the time but I’m sorry – enough is enough. Breast cancer receives $603 million for research – one type of cancer. Lung cancer gets $315 million – one cancer. All 12 kids’ cancer which are completely different – what do they get? They get $208 divided by 12 cancers. And I wondered why there had been only one change to Cannon’s treatment in 25 years!!!! That’s why!!!!

Today in the US 40,000 children are in hospitals living in the hospital beds. Fighting to live one more day! 4 of them will die before the end of today. Can you imagine?

Did I ever imagine I would hear ‘your kid has cancer?’  No.

But I did…. 

And…. 

I got GREEDY!!!!!!

One kid’s life being changed is not enough!!!! 

Congressmen and Senators may not listen but they will certainly hear this from me next week!!!  

I will not be quiet!!

I am greedy for change!!!!!! 

Comment if you’re greedy, too!!! 

Please volunteer to be a part of the movement that plans to change to the face of kids’ cancer – with your help!!! We cannot do it alone!!! Cannonball needs a bigger team!!!! Go BIG or Go HOME!!!!! 

Cannon is getting strong from occupational therapy, swim therapy – the pictures are him smiling as he is so pleased he can get out his chair – only did this for first time today…. I’m excited for him – here comes the climbing stage – one word! Amazeballs!!!!

Written by Mumma-Bear

Cannonball Kids’ Cancer 

Thankful For The Fight

Pray Hard

30 Days Cancer Free

One month cancer free……

White House Here We Come….

Thoughts on our NEW information cards….

The information cards are ready…..

Slightly obsessed with these truly incredible information pieces created by our creative director and his team…

Michael and I are armed with these and a camera so stay tuned for updates.  DC Here We Come!!!

Written by Mumma-Bear

Cannonball Kids’ Cancer 

Thankful For The Fight

Pray Hard

29 Days Cancer Free

What Does 28 Days cancer Free Look Like?….

What does 28 days cancer free look like? ….

Well it sounds like this: Cannon continues to amaze us with his eating and trying EVER so hard to talk. He is getting stronger but still very weak ..but most importantly getting stronger.

28 days cancer free....
28 days cancer free….

We have had differing opinions on whether he should have hearing aids NOW or not and subsequently are looking to a third opinion. I know that if Cannon does need them he will make them cool and make sure everyone else that has them around him feels cool, too! He is just that kid! He is a lover. 

Cannon starts medications again on Monday – I know they save his life and thus I refrain from complaining. They do change his mood a lot but I’m thankful he is here and thankful a change in mood is now noticeable due to his non-stop smiling… For months he was emotionless so perspective, Mumma-bear 😉 

July 6th Cannon takes his last meds for the protocol and July 7th we begin scans for the week. Scanxiety is setting in already but I must stay strong and focus on today and not be fearful of tomorrow.

End of July we hope to go to Michigan for the trial chemo drug DFMO which he will be placed on for two years and consists of 8 pills a day. It’s all in motion and we wait to hear back from them. 

The goal…..

Keep the cancer away….

We do not want… nor does anyone want… to be in the relapse category. 

Please continue to pray for my buddy PATRICK – he has scans today!!

Things at the Cannonball Kids’ Cancer headquarters – how would I describe it….mmmm…. Crazy!!!!!

Thank you for all who applied for volunteering and anyone that wants to please go to our volunteer page: 

http://www.cannonballkidscancer.org/volunteer/

Yes – you can apply from any State or Country. 

We have reviewed hundreds of applications and continue to segment them into groups and advisory boards. If you haven’t submitted one, get one in soon. Please be patient with us, we will be getting in touch within the next two weeks. 

Michael and I are off to DC to educate ourselves and then use that to educate others. I am a little over excited about visiting the White House – that’s pretty cool for a Scottish lassy…. But most of all I am just yearning to learn more and change things for these kids. That’s my focus: education to eradicate kids cancer…. That’s where I see myself within the Foundation (which is huge, by the way). A lobbyist? Perhaps my law degree will come into use after all 😉 

I am so thankful for everyone that is making kids’ cancer weaker as we TEAM CANNONBALL get BIGGER and stronger …. We are only an infant charity right now but before you know it …….

We are trying to transition the main Cannonball Kids’ Cancer information and updates to our website now – a much easier resource for our time to compile packet information, funding, research, etc. All of which is being worked on really hard by the team… So I ask kindly and nudge you gently to start checking our website for information. If you all, sorry how do you Americans say it ‘y’all’ don’t follow directions well (I get it, I’m that way ;)) then I won’t nudge SO gently next time….

Cannon and I got some quality time ‘just us’ today (a complete rarity), it was amazing!!! Look at this guy go….

I am 

I continue to be

Thankful for the fight  

 

Written by Mumma-Bear

Cannonball Kids’ Cancer 

Thankful For The Fight

Pray Hard

28 Days Cancer Free

Cannon 28 days cancer free!!!

NO evidence of DISEASE.. Cancer Free!!!!

I started writing a post before I got this news but thank goodness I can ditch that post and blog the words:

Cancer Free

No Evidence of Disease

Ahhhhhhhhhhhh
Finally!!!!
Cannon has worked so hard for this day….

I confess, I cried when Dr. Susan Kelly showed me his last urine results and then today’s. It wasn’t pretty but it couldn’t be held back…. A rush of emotions flew through my body. Cannon’s levels are now 3.8 and 6.2 (below 13 is normal). When he was diagnosed they were 300. We know we still have two years of outpatient treatments but that’s our insurance policy for what we already know… Cannon has no evidence of any disease in his body.

Today, May 20, 2014, a day I will never ever forget!! Ever!!!

I am not sure how I express in words the feeling in my heart and soul. The truck that was pushing me against the wall over and over yesterday has released me from it’s grips and finally a pressure from my chest is lessening.

My sister brought the twins to see me and I got to share the amazing news with her and the boys.

To celebrate this incredible news Team Cannonball has a new sale for t-shirts starting today. I am sorry we took so long to get this project going but below is the link to buy t-shirts. I believe kids sizes are available too. Please know the funds raised from the sale will NOT go to our family. They will go directly to Cannonball Kids’ Cancer. The foundation is in the 9 months legal process…September 2014 it will be complete. So the funds will go 100 percent to kids’ cancer research and awareness initiatives at CKC. 

Cannon has slept almost all day since he didn’t sleep last night. I should probably try and rest but I am just so happy that everything we have worked hard for is paying off. Cannon did this. Nobody else can take that from him. We just helped him along the way. But Cannon did this, he went through 13 hour surgeries, he was taken to near death in transplant… he did it all. I am so proud of that kid I get to call my son. Michael and I are just so happy!! I can’t wait to hug my husband and really celebrate. 

Link for buying T-Shirts…..

www.teespring.com/cannonballkidscancer3

Written by Mumma-Bear
Cannonball Kids’ Cancer 
Thankful For The Fight
Pray Hard

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POST OFFICE BOX 547797
ORLANDO, FL 32854
(321) 325-5392
INFO@CANNONBALLKIDSCANCER.ORG

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