HAPPY 10th BIRTHDAY, CANNON!
Dear *{{Informal Name}}*,
Change is inevitable, often necessary, and at CKc, always the goal.
Like so many of you, CKc has experienced a lot of change recently. Last month, we said goodbye to our executive director, Karen Revels, as she moved on to a new role at Junior Achievement.
This month, we are celebrating change: CANNON, whose cancer journey launched CKc, turned 10 years old! Going from single digits to DOUBLE digits is quite an achievement for any kid. But for Cannon, who was diagnosed with neuroblastoma at 18 months and given 50/50 chance to live, it's a MONUMENTAL milestone!
The reality we face is that FIVE children die each day in the U.S. from cancer. The average age at death is EIGHT years old. There is still so much work to be done. But today, we celebrate: Cannon is TEN! We are all so grateful! The goal is that ALL kids fighting cancer make it to 10, 50, even 100 birthdays. And thanks to YOU, the status quo for pediatric cancer is changing.
The team wants to show you some of your recent impact. Please scroll through and check out all that YOU are doing through CKc!
In this newsletter, you'll find:
- Research Updates
- Promising CKc-funded research published in New England Journal of Medicine
- CKc's 2021 grant application cycle in now open!
- Education Updates
- House appropriations committee includes CKc-drafted language in 2021 House Appropriations Bill
- CKc's newest education campaign will launch September 2021
- General Updates
- Gold Gala donors generously gave $430,000 to fund innovative research options for kids and educate for change!
- Donor spotlight - THANK YOU to the Gold Gala committee and hosts!
- Upcoming Events (You do NOT want to miss!)
- September: #Save5 yard signs, create your own page for Pediatric cancer Awareness Month, and more!
- October 8th: Sarah's Sporting Clays Against cancer
The CKc team is happy to share so much good news with you.
With gratitude,
Valerie Solomon
Interim Executive Director
Cannonball Kids' cancer Foundation
RESEARCH
Dr. Friedman,
CKc-Funded Researcher
G207 immunotherapy is well tolerated in children with gliomas and shows signs of clinical effectiveness
CKc-funded viral immunotherapy research shows promise against pediatric brain tumors
The findings were presented at the virtual American Association for Cancer Research Annual Meeting 2021 and published online in the New England Journal of Medicine. In the Phase 1 clinical trial of 12 patients between 7 and 18 years of age, the investigators employed a modified virus known as G207, derived from the herpes virus responsible for cold sores. The virus is genetically altered so that it infects only tumor cells. When injected into a malignant brain tumor via a catheter, the virus enters the tumor cells and replicates. This kills the cell and releases the virus progeny to hunt out other tumor cells. Additionally, the virus induces a strong response by the body’s immune system, which can attack the tumor.
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CKc's Fall 2021 Grants Cycle is Underway!
Ten innovative research projects were invited to apply for funding through CKc's clinical trial, young investigator, and program grants. Applications are due on August 25th, and the scientific advisory board will review the applications and make recommendations in September. The more money we raise before then, the more research we can fund!
EDUCATING FOR CHANGE
Congresswoman
Stephanie Murphy
House Appropriations Committee Approves CKc Report Language
Report language originally drafted by CKc was included in the House Appropriations bill which passed July 14, 2021. This accomplishment would not have been possible without the support and leadership of Congresswoman Stephanie Murphy.
Why is this important?
The Report Language approved by the House Appropriations Committee ensures all relevant data needed to assist childhood cancer researchers in developing innovative treatments for childhood cancer are made available through the National Childhood Cancer Registry and other integrated Childhood Cancer Data Initiative programs.
“The Report Language addresses a problem we have heard from both families and researchers fighting pediatric cancer,” said interim executive director, Valerie Solomon. “The families tell us the national data does not reflect their reality of pediatric cancer and researchers report the aggregate data collected on a national level is not truly accessible to them, particularly for very rare forms of childhood cancer. This report language puts on record the need for critical access to data for researchers doing the difficult work of finding less-toxic treaments for childhood cancer, and CKc is proud to partner with Congresswoman Stephanie Murphy to bring attention to this issue.”
GOLD GALA UPDATE
Thank you, thank you, thank you! Gold Gala donors generously gave more than $430,000 to fund innovative research options for kids and educate for change! We could not have done this without each of you, the incredible committee, and hosts who gave their time, passion, and resources to help fight childhood cancer.
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UPCOMING EVENTS
Go Gold for Pediatric cancer Awareness Month...Order your yard sign(s) today and help us educate for change and raise funds for innovative childhood cancer research. Include the shipping address for your signs, and they will be delivered to your front door! Your purchase will fund CKc’s mission to fund innovative, accessible research for children fighting cancer to provide better treatments and quality of life, and educate for change. Please order your signs by August 23rd to ensure timely delivery.
If you are in Central Florida, you can join us at Blackjacks Sporting Clays for the annual Sarah's Sporting Clays Against Cancer on October 8th!
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Val Solomon
Val Solomon named Interim Executive Director
We want to say a big thank you to Karen Revels for her leadership of CKc over the past two years. Good luck in your new role at Junior Acheivement!
You can read the press release HERE. The CKc board has named a search committee to select the next executive director.
More on that in the next newsletter!
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Your Impact to Date:
You have made a difference in the lives of children with cancer AND their families! See how your support has impacted the world around you:
Treatment Options Created:
593
Research
Grants Awarded:
24
First-Of-Their-Kind Research Projects:
92%
Childhood cancer Facts:
"Survivorship" is a metric that originates in adult cancer treatment. To be deemed a cancer "survivor" a child must live at least five years after their cancer DIAGNOSIS.
THAT MEANS:
- It is possible for a child to be labeled a "survivor"
and still have cancer. - It is possible for a childhood cancer "survivor" to suffer life-long or life-threatening side-effects of their cancer treatment.
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